STAND NUMBER: N163
The Vision for the Charity is: â€¨YOPD will have universal recognition to counter the stigma and better address the specifics of a younger Parkinson`s diagnosis.â€¨â€¨Spotlight YOPD has five key aims:
â€¨1. To have YOPD recognised globally by patients, clinicians, researchers, pharma and the general public as a separate rare syndrome - with many cases being genetic.
2. To promote whole genome analysis of all those with YOPD in the hope of identifying both type and cause of condition - enabling the sharing of knowledge on likely symptoms, side effects and most effective treatments, according to the type.
3. To campaign politically and plug the gaps socially - helping those with YOPD gain access to not only treatments but also the benefits and support required whether emotional, practical or financial.
4. To have YOPD understood as a long-term condition - with emphasis on a holistic approach to exercise, diet, counselling, better treatment options and support - in order to produce dedicated NICE guidelines, outlining specific symptoms, treatment and life challenges.
5. To accelerate diagnosis and give those diagnosed, and those around them, the strength and support to take control of their own condition.